FORWARD TO A FRIEND TROUBLE VIEWING - READ ONLINE VISIT OUR WEBSITE
MARCH 2016

RESEARCH 1ST NEWS | MARCH 2016

In an article published recently in the Chronicle, our organization’s print publication, I discussed the many challenges facing the ME/CFS community and singled out members of the medical establishment who still wrongly attribute this serious and debilitating disease to psychosomatic factors.

Such a narrative—flawed to begin with—is outdated and intolerable in the era following the Institute of Medicine report, which defined ME/CFS as a complex pathophysiology. I also made the distinction between healthcare clinicians not properly informed about the disease and those informed, yet still ME/CFS deniers.

Granted, researchers often evolve in their thinking regarding complex medical dilemmas and that is at the core of any scientific pursuit. What we require in ME/CFS leadership are true believers who seek a defined pathophysiological root cause(s) for our disease. Any time the ME/CFS community struggles to build confidence in a researcher is in itself a clear indication that there is a troubling mismatch somewhere. What we need is a steadfast commitment in both resources and researchers to uncover the systemic dysfunction of this disease without prior baggage, bias or dogma. Read More...

Yours,

Zaher Nahle
Vice President for Research and Scientific Programs
Solve ME/CFS Initiative

RESEARCH ROUNDUP

 

Carol Head Meets with NIH, Congressional Staff

Solve ME/CFS Initiative President Carol Head traveled to Washington, D.C., March 7 for a series of meetings with staff from the National Institutes of Health and congressional offices.


TO READ MORE, GO HERE.

 

Solve ME/CFS Initiative Provides BioBank Samples to NIH Researcher

The Solve ME/CFS Initiative BioBank and Patient Registry is providing samples to support the research of Dr. Jay Chung, Group Leader and Senior Investigator at the Laboratory of Obesity and Aging at the National Institutes of Health.


TO READ MORE, GO HERE.

 

RESEARCH ROUNDUP

 

NIH Holds Teleconference for ME/CFS Advocates

On March 8, the National Institutes of Health held a teleconference with a group of advocates to discuss the Institute’s new intramural ME/CFS study. NIH Director Francis Collins, MD, PhD, kicked off the call by reiterating NIH’s commitment to this research area.


TO READ MORE, GO HERE.

 

Dr. Zaher Nahle Meets with New York Researchers, Clinician

Dr. Zaher Nahle, Vice President for Research and Scientific Programs, traveled to New York March 8 for meetings with other researchers and clinicians to build collaboration regarding ME/CFS. Dr. Nahle met with:

TO READ MORE, GO HERE.

 

NEWS AND EVENTS

 

2016 Webinars Announced Recommendations

The Solve ME/CFS Initiative is kicking off its 2016 webinar series March 17 with a presentation by Sue Levine, MD, founder of the Medical Office of Susan M. Levine, MD. Dr. Levine will address: “The Future of ME/CFS.”

The free webinar will take place at 1 p.m. Eastern time. To register for Dr. Levine’s webinar, go here.


TO READ MORE, GO HERE.

 

Dr. Jonas Blomberg Meets with Carol Head, Zaher Nahle

On Feb. 25, Solve ME/CFS Initiative President Carol Head and Dr. Zaher Nahle, Vice President for Research and Scientific Programs, met with Dr. Jonas Blomberg, a leading Swedish virologist, at the Solve ME/CFS Initiative offices in Los Angeles. Patient advocate Etel Barbork also visited the offices. During the meeting, a wide range of topics related to ME/CFS research and policy were discussed, including the status of ME/CFS research in Sweden and the rest of Europe.

TO READ MORE, GO HERE.

 

SUPPORT US

 

To support our important work, please visit SolveCFS.org/Donate. Consider joining our Sustainers Circle, where your monthly gift ensures we can move forward toward making ME/CFS understood, diagnosable and treatable. It is donations from people just like you that make progress possible.

Thank You!

GET CONNECTED

You can get news and updates daily following us on your favorite social network.

Please feel free to contact our office if you have any questions.
Phone: 704-364-0016
Email: Research1st@solvecfs.org
5455 Wilshire Blvd., Suite 806, Los Angeles, CA. 90036

FORWARD TO A FRIEND TROUBLE VIEWING - READ ONLINE VISIT OUR WEBSITE